Who We Are / What We Do
This website brings together practical and current tools, strategies, and information designed to help physicians and other health care providers in Washington State care for children and youth with special health care needs and their families.Event Type
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Event Details
Friday, June 25 at 1 pm —don’t miss this free
Event Details
Friday, June 25 at 1 pm —don’t miss this free Lewis County Autism Coalition presentation on Reimagining (Dis)ability within the context of education and beyond.
Presented by Jeremy Kaufman, a life skills teacher with the Visions program and an autistic person.RSVP/Register at https://bit.ly/35y0fuy for zoom link-- Bill Weismann, Facilitator Lewis County Autism Coalition (503) 422-2502 www.lcautism.org
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Time
(Friday) 1:00 pm - 2:00 pm
Location
Zoom video conference
Organizer
Lewis County Autism Coalitionconference@lcautism.org
Event Details
SPEAKERS Bonnielin Swenor, MPH, PhD – Johns Hopkins Disability Health Research Center Merrill Friedman – Anthem Tawara D. Goode, MA – National Center for Cultural Competence at Georgetown University In the United States,
Event Details
SPEAKERS
Bonnielin Swenor, MPH, PhD – Johns Hopkins Disability Health Research CenterMerrill Friedman – Anthem
Tawara D. Goode, MA – National Center for Cultural Competence at Georgetown University
In the United States, one in four adults has a disability and the pandemic has disproportionately impacted this community and made it more difficult to access care. Some people with disabilities were more likely to become infected with or have a severe illness from COVID-19 due to underlying medical conditions or living situations. The pandemic also affected their psychological and financial health, with people with disabilities experiencing higher rates of unemployment than the general population. While individuals with disabilities were often given higher priority status for receiving the vaccine, many of the COVID-19 vaccine websites violated disability rights, hindering access.
This webinar will explore these challenges and showcase strategies to address the diverse needs of people living with disabilities and work toward health equity. Expert panelists will discuss:
- The pandemic’s impact on individuals with disabilities and Johns Hopkins’ partnership to create a database on the prioritization of the disability community in COVID-19 vaccine distribution
- A health plan’s response to support people with disabilities during the pandemic, expanding telehealth and increased care options, and addressing comorbidities and the needs of COVID-19 longhaulers
- Addressing the intersection of disability, race, and ethnicity and the importance of cultural and linguistic competency in supporting individuals with developmental disabilities
Closed captioning and an ASL interpreter will be available
Learn more and register
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Time
(Monday) 10:00 pm - 11:00 pm
Location
Online
Organizer
NICMH Foundation (National Institute for Health Care Management)About NIHCM Foundation The National Institute for Health Care Management (NIHCM) Foundation is a nonprofit, nonpartisan organization dedicated to transforming health care through evidence and collaboration.
Event Details
In response to the pandemic, states rapidly established new funding mechanisms and implemented emergency regulations, many of which focused on telehealth. Policies that expanded the use of telehealth have had
Event Details
In response to the pandemic, states rapidly established new funding mechanisms and implemented emergency regulations, many of which focused on telehealth. Policies that expanded the use of telehealth have had a significant and largely positive impact on children and youth with special health care needs (CYSHCN) and their families, but this shift has also highlighted disparities. Many low-income and rural families lack broadband access, the required technologies, safe locations to conduct private visits, or training on how to request or use telehealth.
Speakers will discuss their experiences with how telehealth flexibilities have affected CYSHCN, families, providers, and health systems. They will reflect on what is important to retain and how to apply lessons learned moving forward. We suggest attendees read the report COVID-19 Policy Flexibilities Affecting Children and Youth with Special Health Care Needs prior to the event. Audience Q&A is highly encouraged.
Report Author
Sharon Silow-Carroll, MSW, MBA is a Principal at Health Management Associates (HMA). She has 30+ years of experience in health care policy research and analysis – identifying barriers and assessing innovative initiatives to enhance quality, access, value, and coverage. She focuses on Medicaid, maternal and reproductive health, children and youth with special health care needs, and care management and coordination. Prior to joining HMA, she was Senior Vice President at the Economic and Social Research Institute. Sharon earned a master’s degree in business administration at the Wharton School, and a master’s degree in social work at the School of Social Work, University of Pennsylvania.Speakers
Cara Coleman, JD, MPH is the Director of Public Policy and Advocacy at Family Voices National and the author of “I am Justice, Hear Me Roar” about her daughter, Justice, with special health care needs and disabilities. She is an Instructor of Pediatrics at the Virginia Commonwealth University School of Medicine. She is Associate Editor for Family Partnerships on the Executive Editorial Board of Pediatrics. In the past, Cara has worked as an adult health specialist, a case manager for homeless pregnant women, a counselor in a shelter for battered women, a law clerk for a judge, an immigration subject matter consultant, and an attorney serving low-income immigrants. Cara is a graduate of the University of Notre Dame, has a Master’s in Public Health from Tulane University and a law degree from Temple University.
Alison Curfman, MD, MBA is a practicing Pediatric Emergency Medicine physician at Mercy Hospital St. Louis and serves as Clinical Director of Pediatric Operations for Mercy. She leads digital transformation in pediatrics with an emphasis on quality, equitable access to care, and value-based care. Dr. Curfman co-founded SPROUT, an international multi-center research network for pediatric telehealth research. She also is an executive committee member for the American Academy of Pediatrics Section on Telehealth Care. As a pediatrician with experience parenting her own four young children, Dr. Curfman aims to empower parents with knowledge to be advocates for their children.
Cheryl J. Roberts, JD is currently the Deputy Director of Programs and Operations at the Virginia Department of Medical Assistance Services where she provides executive level leadership and direction for the divisions that oversee managed care, services and operations, and program integrity for Medicaid/CHIP. She is experienced in a patient-centered, integrated model of care that includes maternal and child health, health care quality, oral and behavioral health, pharmacy and long-term services. Previously, Cheryl served as Chief Operating Officer and Assistant Vice President of Operations at two large health insurance organizations. Cheryl received her Juris Doctorate from Rutgers School of Law, and her B.A. in Sociology from the City College of New York.
Moderator
Ed Schor, MD is a pediatrician and an independent consultant providing advice on child health care systems and child health policy. Most recently he served as Senior Vice President at the Lucile Packard Foundation for Children’s Health. He has held senior positions with The Commonwealth Fund where he worked to improve preventive child health care, the Kaiser Family Foundation where he promoted the adoption of functional health status measurement, and with the Iowa Department of Public Health where he was Medical Director for Family and Community Health and Director of the Center for Public Health Policy. He has written extensively on the family context of child health.more
Time
(Tuesday) 10:30 am - 11:30 am
Location
Online
Event Details
An Introduction to the Office of the Education Ombuds and Rresources for Parental Advocacy with Jinju Park
Event Details
- An Introduction to the Office of the Education Ombuds and Rresources for Parental Advocacy with Jinju Park
Description: Join us to learn about the Office of the Education Ombuds, the services it provides and some tips and strategies for improving communication with schools.
Presenter’s Bio: Jinju Park is a Senior Education Ombuds with the Governor’s Office of the Education Ombuds.
How The Office of the Education Ombuds Can Help You – Read This Editorial and Learn More at an Upcoming Webinar
In this editorial from the Seattle Times, Sarah Butcher, Dawn Rains and Jacob Vela discuss how the Office of the Education Ombuds help families and why it needs to be supported. You can learn more about the Office of the Education Ombuds at an upcoming free virtual webinar hosted by the WA State Fathers Network on July 6th from 6:30-7:30 p.m.. The webinar is called An Introduction to the Office of the Education Ombuds and Resources for Parental Advocacy, presented by Jinju Park, Senior Education Ombuds. Register for this and other webinars in the series here.
Location: Virtual – a confirmation with a Zoom link will be sent to you after registering.
Men, Women and All Couples are Welcome. All sessions will be recorded.
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Time
(Tuesday) 6:30 pm - 7:30 pm
Location
Zoom video conference
Organizer
Event Details
Research shows that support from adults can drastically cut a transgender youth’s risk of depression and suicide. Many professionals want to support their clients but lack the skills and knowledge
Event Details
Research shows that support from adults can drastically cut a transgender youth’s risk of depression and suicide. Many professionals want to support their clients but lack the skills and knowledge needed to confidently navigate these complex topics. Taught by a psychologist who is both autistic and transgender, this webinar introduces the key concepts around gender identity as well as issues specific to the autistic community.
Course Objectives:
- Learn the terms and concepts needed to discuss gender identity accurately and respectfully
- Gain knowledge about gender identity issues specific to autism
- Acquire practical skills and strategies for helping gender-diverse autistic people
Who should attend:
- Professionals who wish to support gender-diverse clients from preschool through young adulthood and want to know more about the topic and/or how the issues specifically apply to autistic people.
Content level: Beginner
Clock hours: This program, when attended/viewed in full, offers 2 WA State approved clock hours. Additional fees apply. We are NOT approved providers for other CEUs. Certificates of completion will be provided after the completion of the webinar.
Instructor: Lucas Harrington, PsyD
WHERE: Webinar
COST: $56 per person, *10% off for groups of 5 or more
*Recording of live webinar available for viewing between July 13 and October 13, 2021.more
Time
(Tuesday) 4:00 pm - 6:00 pm
Location
Online
Organizer
University of Washington Autism Center, Center on Human Development and DisabilityCaring for individuals and families affected by autism spectrum disorders through exceptional clinical services, innovative scientific research and high-quality training. Our faculty and staff reach across the UW School of Medicine, College of Arts & Sciences, and College of Education.
Event Details
This virtual event is an opportunity to highlight innovative life course intervention research in the six Research Nodes supported by the Autism Intervention Research Network on
Event Details
This virtual event is an opportunity to highlight innovative life course intervention research in the six Research Nodes supported by the Autism Intervention Research Network on Physical Health (AIR-P). This event will include asynchronous and synchronous elements including video presentations of e-posters that will be available for viewing one week in advance of the meeting, panel presentations, and individual virtual rapid-fire presentations with Q&A. Presentations will highlight the Healthy Weight Research Network, the Genetics Research Node of AIR-P, and multiple research projects from AIR-P Collaborating Research Entities. Agenda and access to videos will be available one week in advance of the meeting.
ABOUT AIR-P:
In September 2020, the University of California, Los Angeles (UCLA) assumed leadership of AIR-P under the direction of Dr. Alice Kuo. Funded by the Maternal and Child Health Bureau, Health Resources and Services Administration, the AIR-P is an interdisciplinary, multicenter research network for scientific collaboration and infrastructure aimed at increasing life expectancy and quality of life for autistic individuals, with a focus on underserved/vulnerable populations.
AIR-P establishes and maintains an interdisciplinary, multicenter research network for scientific collaboration and infrastructure to increase the life expectancy and quality of life for autistic individuals, particularly for underserved and vulnerable populations. The purpose of the AIR-P is to support innovative life course intervention research that promotes optimal health and well-being of autistic individuals across the lifespan. The AIR-P envisions a future where autistic individuals experience optimal multi-dimensional health and well-being. More information about the AIR-P is provided at airpnetwork.ucla.edu
PLEASE NOTE:
This meeting is open to all AIR-P and AUCD network members. You can register here
To join the AIR-P Network, click here to sign up for the monthly newsletter.
The AIR-P Research Day is hosted by AUCD in collaboration with UCLA and HRSA. If you have questions, please contact Phil Maglo at AUCD.
This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under the grant #UT2MC39440. The information, content and/or conclusions are those of the authors and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.
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Time
(Wednesday) 12:00 pm - 3:00 pm
Location
Online
Organizer
Autism Intervention Research Network on Physical Health (AIR-P)The Autism Intervention Research Network on Physical Health establishes and maintains an interdisciplinary, multicenter research network for scientific collaboration and infrastructure to increase the life expectancy and quality of life for autistic individuals, particularly for underserved and vulnerable populations. The purpose of the AIR-P is to support innovative life course intervention research that promotes optimal health and well-being of autistic individuals across the lifespan.
Event Details
Helping Our Children Develop Meaningful Relationships with Lance Morehouse Description: How can we encourage meaningful relationships for our
Event Details
- Helping Our Children Develop Meaningful Relationships with Lance Morehouse
Description: How can we encourage meaningful relationships for our sons and daughters with disabilities? How can we help create something that comes naturally for most children and adults? This interactive workshop will explore issues parents worry about most including loneliness, isolation, relationships, adolescence, sexuality, behaviors, and safety.
Presenter’s Bio: “Lance Morehouse, CEO Sherwood Community Services www.sherwoodcs.org Lance has had the opportunity to meet hundreds if not thousands of families with sons/daughters with disabilities over his career. His passion for this work comes from his experience as a father of two sons with significant disabilities. He was on the Washington State Fathers Network (WSFN) Steering Committee from 1999-2007, was Eastern Washington Regional Coordinator and also founded and facilitated the Spokane Fathers Network. He is the proud recipient of the WSFN Big Time Daddy Award in 1998. Lance continues to be connected with the WSFN and is part of a group of veteran dads who met through the WSFN and continue to meet to this day. In his professional life, Lance is CEO of Sherwood Community Services in Lake Stevens, Washington. Sherwood provides Early Intervention Services for infants and toddlers with developmental disabilities and delays as well as Vocational Services for adults with disabilities. With a tagline “Believing in Abilities” everything Sherwood does revolves around this belief and value.”
Men, Women and All Couples are Welcome. Monthly webinar series from the Washington State Fathers Network and Kindering:
More information about the series: https://kindering.org/wp-content/uploads/2021/05/2021-WSFN-virtual-webinars.pdf
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Time
(Tuesday) 6:30 pm - 7:30 pm
Location
Zoom video conference
Organizer
Event Details
Save the Date! WSLI’s annual conference will take place online August 24th. Conference agenda coming soon. WSLI: Training Family Leaders. Elevating Family Voice. Changing Systems. More information
Event Details
Save the Date!
WSLI’s annual conference will take place online August 24th. Conference agenda coming soon. WSLI: Training Family Leaders. Elevating Family Voice. Changing Systems.
Time
All Day (Tuesday)
Location
Online
Organizer
Washington Statewide Leadership InitiativeOur Mission: To elevate family voice: provide connections so that family voice is respected, amplified, and heard in order to support Children and Youth with Special Health Care Needs and their families at all levels in Washington. Our Vision: Children, individuals, and families in Washington State, including those with special health care needs, will be healthy, safe, resilient, and included. Our Values: We value meaningful partnerships with communities and families so that we can: work towards collective impact, engage in cross systems partnerships statewide, utilize public health frameworks, and promote equity and inclusion. Our goal as an initiative is supporting a coalition infrastructure that allows organizations providing family support and leadership development to work together to leverage resources, create statewide connections, and increase organizational capacity to serve families. We want to: Inform, support, and empower Washington families to be partners and leaders in their child’s care. Develop and implement a system to track and match trained families and consumers to relevant and meaningful leadership opportunities. Create a means to measure our success through continuous quality improvement. Use the evidence of our success to justify our work to funding entities.
Link to full-month event calendar.
Contact Information
- Box 357920
Seattle, WA 98195-7920 - 206.685.1279
- info@medicalhome.org
Our Sponsors:
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