Name: Pediatric End-of-Life Conference
Start: 2019-10-29T08:00-8:00
End: 2019-10-29T16:30-8:00

october, 2019

29oct8:00 am4:30 pmPediatric End-of-Life Conference Event Organized By: Seattle Children's Event Type:Conference

Event Details

This one-day course, sponsored by the Development of Nurses Shared Governance Council, is offered to all disciplines that care for children at the end of life. The course will describe the philosophies, principles and practices of palliative care that can be integrated across different settings to influence quality pediatric end-of-life. Information will also be provided regarding the role of healthcare providers and families in providing palliative care for children.

Time: 8 a.m. to 4:30 p.m.
Location: Wright Auditorium, Seattle Children’s, 4800 Sand Point Way NE, Seattle, WA 98105
See the save-the-date flyer (PDF) for more information.
Community professionals may register online.
For questions, please email Outreach Education or call 206-987-3200.

Time

(Tuesday) 8:00 am - 4:30 pm PST

Location

Seattle Children's Wright Auditorium

4800 Sand Point Way NE, Seattle, WA 98105

Organizer

Seattle Children's 4800 Sand Point Way NE, Seattle, WA 98105

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Who We Are / What We Do
This website brings together practical and current tools, strategies, and information designed to help physicians and other health care providers in Washington State care for children and youth with special health care needs and their families.
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23jun12:00 pm1:00 pmLocal Health Dept Grants: Funding, Funding Everywhere - and Not a Cent to Spend: Navigating Recent Federal Grant Programs Event Organized By: NACCHO (National Association of County and City Health Officials) Event Type:Webinar

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NACCHO Webinar Join NACCHO and public health professionals from Diamond Affiliate Partner, AM TRACE, on June 23 at 3:00PM EST (noon Pacific) for this timely discussion about recent federal grant

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NACCHO Webinar
Join NACCHO and public health professionals from Diamond Affiliate Partner, AM TRACE, on June 23 at 3:00PM EST (noon Pacific) for this timely discussion about recent federal grant programs for local public health. The event will feature Dr.Christopher K Orlea, CPH, and Epidemiologist, Lori Peterson, MS, MPH, who will share their experiences from the front lines as government employees, as well as tools and opportunities that may lead to collaboration and funding for your Local Health Department. Register today »

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(Wednesday) 12:00 pm - 1:00 pm

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NACCHO (National Association of County and City Health Officials)

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06jul10:30 am11:30 amCOVID-19 Telehealth Policies Affecting CYSHCN: What to Keep, Modify, or Discard? Event Organized By: Lucile Packard Foundation for Children's Health Event Type:WebinarIn-person or Online:Online

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In response to the pandemic, states rapidly established new funding mechanisms and implemented emergency regulations, many of which focused on telehealth. Policies that expanded the use of telehealth have had

Event Details

In response to the pandemic, states rapidly established new funding mechanisms and implemented emergency regulations, many of which focused on telehealth. Policies that expanded the use of telehealth have had a significant and largely positive impact on children and youth with special health care needs (CYSHCN) and their families, but this shift has also highlighted disparities. Many low-income and rural families lack broadband access, the required technologies, safe locations to conduct private visits, or training on how to request or use telehealth.

Speakers will discuss their experiences with how telehealth flexibilities have affected CYSHCN, families, providers, and health systems. They will reflect on what is important to retain and how to apply lessons learned moving forward. We suggest attendees read the report COVID-19 Policy Flexibilities Affecting Children and Youth with Special Health Care Needs prior to the event. Audience Q&A is highly encouraged.

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Report Author
Sharon Silow-Carroll, MSW, MBA is a Principal at Health Management Associates (HMA). She has 30+ years of experience in health care policy research and analysis – identifying barriers and assessing innovative initiatives to enhance quality, access, value, and coverage. She focuses on Medicaid, maternal and reproductive health, children and youth with special health care needs, and care management and coordination. Prior to joining HMA, she was Senior Vice President at the Economic and Social Research Institute. Sharon earned a master’s degree in business administration at the Wharton School, and a master’s degree in social work at the School of Social Work, University of Pennsylvania.

Speakers

Cara Coleman, JD, MPH is the Director of Public Policy and Advocacy at Family Voices National and the author of “I am Justice, Hear Me Roar” about her daughter, Justice, with special health care needs and disabilities. She is an Instructor of Pediatrics at the Virginia Commonwealth University School of Medicine. She is Associate Editor for Family Partnerships on the Executive Editorial Board of Pediatrics. In the past, Cara has worked as an adult health specialist, a case manager for homeless pregnant women, a counselor in a shelter for battered women, a law clerk for a judge, an immigration subject matter consultant, and an attorney serving low-income immigrants. Cara is a graduate of the University of Notre Dame, has a Master’s in Public Health from Tulane University and a law degree from Temple University.

Alison Curfman, MD, MBA is a practicing Pediatric Emergency Medicine physician at Mercy Hospital St. Louis and serves as Clinical Director of Pediatric Operations for Mercy. She leads digital transformation in pediatrics with an emphasis on quality, equitable access to care, and value-based care. Dr. Curfman co-founded SPROUT, an international multi-center research network for pediatric telehealth research. She also is an executive committee member for the American Academy of Pediatrics Section on Telehealth Care. As a pediatrician with experience parenting her own four young children, Dr. Curfman aims to empower parents with knowledge to be advocates for their children.

Cheryl J. Roberts, JD is currently the Deputy Director of Programs and Operations at the Virginia Department of Medical Assistance Services where she provides executive level leadership and direction for the divisions that oversee managed care, services and operations, and program integrity for Medicaid/CHIP. She is experienced in a patient-centered, integrated model of care that includes maternal and child health, health care quality, oral and behavioral health, pharmacy and long-term services. Previously, Cheryl served as Chief Operating Officer and Assistant Vice President of Operations at two large health insurance organizations. Cheryl received her Juris Doctorate from Rutgers School of Law, and her B.A. in Sociology from the City College of New York.

Moderator
Ed Schor, MD is a pediatrician and an independent consultant providing advice on child health care systems and child health policy. Most recently he served as Senior Vice President at the Lucile Packard Foundation for Children’s Health. He has held senior positions with The Commonwealth Fund where he worked to improve preventive child health care, the Kaiser Family Foundation where he promoted the adoption of functional health status measurement, and with the Iowa Department of Public Health where he was Medical Director for Family and Community Health and Director of the Center for Public Health Policy. He has written extensively on the family context of child health.

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(Tuesday) 10:30 am - 11:30 am

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Online

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Lucile Packard Foundation for Children's Health

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06jul6:30 pm7:30 pmWA Fathers Network Monthly Webinar: Introduction to the Office of the Education Ombuds and Resources for Parental Advocacy Event Organized By: Kindering Event Type:Webinar

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An Introduction to the Office of the Education Ombuds and Rresources for Parental Advocacy with Jinju Park

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An Introduction to the Office of the Education Ombuds and Rresources for Parental Advocacy with Jinju Park
Description: Join us to learn about the Office of the Education Ombuds, the services it provides and some tips and strategies for improving communication with schools.
Presenter’s Bio: Jinju Park is a Senior Education Ombuds with the Governor’s Office of the Education Ombuds.

How The Office of the Education Ombuds Can Help You – Read This Editorial and Learn More at an Upcoming Webinar

In this editorial from the Seattle Times, Sarah Butcher, Dawn Rains and Jacob Vela discuss how the Office of the Education Ombuds help families and why it needs to be supported. You can learn more about the Office of the Education Ombuds at an upcoming free virtual webinar hosted by the WA State Fathers Network on July 6th from 6:30-7:30 p.m.. The webinar is called An Introduction to the Office of the Education Ombuds and Resources for Parental Advocacy, presented by Jinju Park, Senior Education Ombuds. Register for this and other webinars in the series here.

Location: Virtual – a confirmation with a Zoom link will be sent to you after registering.

Men, Women and All Couples are Welcome. All sessions will be recorded.

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(Tuesday) 6:30 pm - 7:30 pm

Location
Zoom video conference

Organizer

Kindering

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14jul12:00 pm3:00 pmAutism Intervention Research Network on Physical Health (AIR-P) Research Day at Autism CARES 2021 Event Organized By: Autism Intervention Research Network on Physical Health (AIR-P) Event Type:ConferenceIn-person or Online:Online

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This virtual event is an opportunity to highlight innovative life course intervention research in the six Research Nodes supported by the Autism Intervention Research Network on

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This virtual event is an opportunity to highlight innovative life course intervention research in the six Research Nodes supported by the Autism Intervention Research Network on Physical Health (AIR-P). This event will include asynchronous and synchronous elements including video presentations of e-posters that will be available for viewing one week in advance of the meeting, panel presentations, and individual virtual rapid-fire presentations with Q&A. Presentations will highlight the Healthy Weight Research Network, the Genetics Research Node of AIR-P, and multiple research projects from AIR-P Collaborating Research Entities. Agenda and access to videos will be available one week in advance of the meeting.

ABOUT AIR-P:

In September 2020, the University of California, Los Angeles (UCLA) assumed leadership of AIR-P under the direction of Dr. Alice Kuo. Funded by the Maternal and Child Health Bureau, Health Resources and Services Administration, the AIR-P is an interdisciplinary, multicenter research network for scientific collaboration and infrastructure aimed at increasing life expectancy and quality of life for autistic individuals, with a focus on underserved/vulnerable populations.

AIR-P establishes and maintains an interdisciplinary, multicenter research network for scientific collaboration and infrastructure to increase the life expectancy and quality of life for autistic individuals, particularly for underserved and vulnerable populations. The purpose of the AIR-P is to support innovative life course intervention research that promotes optimal health and well-being of autistic individuals across the lifespan. The AIR-P envisions a future where autistic individuals experience optimal multi-dimensional health and well-being. More information about the AIR-P is provided at airpnetwork.ucla.edu

PLEASE NOTE:

This meeting is open to all AIR-P and AUCD network members. You can register here

To join the AIR-P Network, click here to sign up for the monthly newsletter.

The AIR-P Research Day is hosted by AUCD in collaboration with UCLA and HRSA. If you have questions, please contact Phil Maglo at AUCD.

This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under the grant #UT2MC39440. The information, content and/or conclusions are those of the authors and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.

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(Wednesday) 12:00 pm - 3:00 pm

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Online

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Autism Intervention Research Network on Physical Health (AIR-P)The Autism Intervention Research Network on Physical Health establishes and maintains an interdisciplinary, multicenter research network for scientific collaboration and infrastructure to increase the life expectancy and quality of life for autistic individuals, particularly for underserved and vulnerable populations. The purpose of the AIR-P is to support innovative life course intervention research that promotes optimal health and well-being of autistic individuals across the lifespan.

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03aug6:30 pm7:30 pmWA Fathers Network Monthly Webinar: Helping Our Children Develop Meaningful Relationships Event Organized By: Kindering Event Type:Webinar

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Helping Our Children Develop Meaningful Relationships with Lance Morehouse Description: How can we encourage meaningful relationships for our

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Helping Our Children Develop Meaningful Relationships with Lance Morehouse
Description: How can we encourage meaningful relationships for our sons and daughters with disabilities? How can we help create something that comes naturally for most children and adults? This interactive workshop will explore issues parents worry about most including loneliness, isolation, relationships, adolescence, sexuality, behaviors, and safety.
Presenter’s Bio: “Lance Morehouse, CEO Sherwood Community Services www.sherwoodcs.org Lance has had the opportunity to meet hundreds if not thousands of families with sons/daughters with disabilities over his career. His passion for this work comes from his experience as a father of two sons with significant disabilities. He was on the Washington State Fathers Network (WSFN) Steering Committee from 1999-2007, was Eastern Washington Regional Coordinator and also founded and facilitated the Spokane Fathers Network. He is the proud recipient of the WSFN Big Time Daddy Award in 1998. Lance continues to be connected with the WSFN and is part of a group of veteran dads who met through the WSFN and continue to meet to this day. In his professional life, Lance is CEO of Sherwood Community Services in Lake Stevens, Washington. Sherwood provides Early Intervention Services for infants and toddlers with developmental disabilities and delays as well as Vocational Services for adults with disabilities. With a tagline “Believing in Abilities” everything Sherwood does revolves around this belief and value.”

Men, Women and All Couples are Welcome. Monthly webinar series from the Washington State Fathers Network and Kindering:

More information about the series: https://kindering.org/wp-content/uploads/2021/05/2021-WSFN-virtual-webinars.pdf

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(Tuesday) 6:30 pm - 7:30 pm

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Kindering

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