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This page provides a list of links to data sources that can be used by the Medical Home Leadership Network (MHLN) teams and others to use in program planning, writing grants, and tailoring presentations to community and state groups.

What You’ll Find

Data sources that provide valuable Washington State or County population characteristics, service use and/or needs of one or more of the following groups:

  • children and youth with special health care needs and their families
  • children and youth in general
  • and people with disabilities and special health care needs.

In addition, some links to national resources have been included to provide helpful context for developing grants related to medical homes for children and youth with special needs.

Data Links

NEW Institute for Health Metrics and Evaluation, University of Washington

US County Health Profiles

 “The Washington State Health Care Landscape“, June 2014 Fact Sheet.  From The Kaiser Commission on Medicaid and the Uninsured.

  • As Washington expands health coverage throughout the state, it is also at the forefront of efforts to increase health systems integration and improve health care data collection. This fact sheet provides an overview of population health, health coverage, and health care delivery in Washington in the era of health reform.

The Catalyst Center
The Catalyst Center has updated its web-based state data pages on coverage and financing of care for children and youth with special health care needs (CYSHCN) for each state.

On the state pages, you will continue to find up-to-date information for:

  • Demographics
  • Economics
  • Child health services
  • Factors influencing health insurance coverage
  • Experience with the system of care for CYSHCN
  • The Title V program

The Catalyst Center state pages now include the most recent data on selected topics from:

  • The 2011-12 National Survey of Children’s Health
  • The Kaiser Family Foundation
  • The U.S. Department of Education
  • The U.S. Department of Health and Human Services

To help you stay on top of what’s happening in your state and the nation, the state data pages now incorporate a new health care reform section covering state health insurance market (Exchange) decisions, benchmark plans, and approved health home state plan amendments. Also included are new data indicators on oral health care for CSHCN, percentage of CSHCN in families with income below 200% of the federal poverty level, and underinsurance for children.

The Catalyst Center is dedicated to improving health care coverage and financing for children and youth with special health care needs (CYSHCN). They are funded by the federal Maternal and Child Health Bureau, Health Resources and Services Administration, US Department of Health and Human Services.

The National Survey of Children with Special Health Care Needs (NS-CSHCN) Chartbook 2009-2010 (PDF)
Released June, 2013 by The U.S. Department of Health and Human Services, Health Resources and Services Administration.

This chartbook presents the major findings of the NS-CSHCN on the national level, stratifying each indicator by selected sociodemographic variables such as age, race/ethnicity, income level, and type of insurance. The specific demographic variables used were selected to highlight those of greatest interest or strongest association with each particular indicator. These indicators are also presented by state in comparison to national percentages.

Sections include:

WA DOH CSHCN Program Releases 2012 Data Report
The Washington State Department of Health, Children with Special Health Care Needs Program has released their updated web-based publication. This report provides important information about children and youth with special health care needs to CSHCN Coordinators, policymakers in state and local agencies, families and others interested in this population.

Children and Youth with Special Health Care Needs: Washington State Data Report
Provides a snapshot of the population including:

  • Estimated number of children and youth with special health care needs
  • Social and economic characteristics
  • Services used by this population
  • Unmet service needs
  • Risk behaviors among adolescents with disabilities

County Profiles of Children and Youth with Special Health Care Needs include county specific information about this population—population data, service utilization, hospitalization rates and more! These reports will be useful for:

  • Informing stakeholders about important needs of this population
  • Contributing to community-based and statewide assessment activities
  • Promoting policy discussions, and
  • Guiding program planning and grant development
Data Resource Center (DRC) for Child and Adolescent Health
Great resources for data and and information on Children with Special Health Care Needs and Medical Homes by State and the US. The redesigned Web site of the DRC point-and-click access to data findings from the National Survey of Children’s Health and the National Survey of Children with Special Health Care Needs in one integrated browsing and search tool. Downloadable state-level data profiles with data on over 200 child health indicators are accessible for use in presentations or reports, allowing users to promote a higher-quality health care system for children, youth and families.DRC Releases CSHCN National Survey Data Briefs
Recent briefs:

  • One provides an overview of 20 specific health conditions asked about in the 2009-2010 National Survey of Children with Special Health Care Needs (NS-CSHCN).
  • Another brief uses data from the 2007 National Health Interview Survey and the
    2009-2010 NS-CSHCN to examine complementary and alternative medicine use and expenditures for children with emotional, mental, or behavior conditions or problems.

DRC is a project of the Child and Adolescent Health Measurement Initiative supported by the Health Resources and Services Administration’s Maternal and Child Health Bureau. DRC data briefs on these and other topics are available.

DRC Medical Home Data Portal
The Data Resource Center – funded by the US Maternal and Child Health Bureau– partnered with the American Academy of Pediatrics to create this portal to allow state and family leaders quick access to data on how children and youth in each state experience receiving care withina medical home. The site has searchable state specific information as well as background information about medical home measurement in states and in practices and much more.

Washington State Department of Early Learning: Regional Data About Infants and Toddlers
DEL funded the 10 Infant/Toddler Regions across the state to engage in an assessment and planning effort. Each Infant/Toddler Region produced a report in 2010 with regional data, stakeholder perspectives and services to support infants and toddlers. This data reinforces and provides additional context for the state-level data and helps to describe unique local and regional circumstances.

Washington State Department of Early Learning: Monthly Data for Early Support for Infants and Toddlers Programs by County and by State
Reports by month and year showing number of referrals, evaluations, active cases, and children transitioning out of the programs. Go to ESIT Monthly Data section of page to find this information.

Medical Home Data Monograph – Medical Homes for Children in WA State (PDF)
Washington State Department of Health, Office of Maternal and Child Health, April 2009

Other Washington State Department of Health Data Sources

The Health and Wellbeing of Children: A Portrait of States and the Nation
Overview of broad health characteristics for children and brings together national and state-level data. The chartbook, produced by the Maternal and Child Health Bureau in 2009, is based on data from the National Survey of Children’s Health in 2007 and focuses on measures of children’s physical and mental health, health care, and general well-being as it relates to their families, schools, and neighborhoods. Information for each state, easy-to-follow bar graphs, and breakdown analyses by race and ethnicity are included.

County Level Data from the Social Security Administration

National Baby Facts: Infants, Toddlers, and their Families in the US
National Baby Facts gives you the facts on the invaluable supports and services—whether it’s adequate health care, ample food, housing security, or positive early learning opportunities—that play a crucial role in nurturing a young child’s development and helping all children realize their potential.

Kids Count
State-specific reports or searchable by topic. Lots of data on the educational, social, economic and physical well-being of children. From the Ann E. Casey Foundation.

Policy Report: Giving Kids a Foundation for Lifetime Success
This KIDS COUNT policy report details how a child’s early development from birth through age 8 is essential to making an effective transition into elementary school and for long-term academic achievement. To prepare all of America’s children to succeed, this document sets forth broad policy recommendations. This policy report also features data on early childhood development for every state, the District of Columbia and the nation.

Child Trends Data Bank
The Child Trends DataBank examines and monitors more than 100 indicators that focus on risks and positive developments for children. For each indicator they summarize what the research says about its importance to children’s development, track trends over time and by subgroup, and highlight strategies likely to improve well-being. The site also provides links to state, local, and international data.

Child Trends and the Robert R. McCormick Foundation recently issued The Youngest Americans, a comprehensive indicators-based portrait of the 12 million infants and toddlers (ages birth through two years) in the U.S. Drawing on emerging developmental science and new data sources, the report provides a revealing look at this most fragile, and most promising, stage of life. Here are five key findings:

  • Infants and toddlers have the highest rates of poverty of any age group in America
  • Infants and toddlers in the U.S. are a “majority minority”
  • The majority of mothers of infants and toddlers are employed
  • Experiencing overwhelming or “toxic” levels of stress harms the early brain development of infants and toddlers
  • Current services and supports for infants, toddlers, and their parents reach only a small fraction of families who need them Read the report.

Center for the Study of Social Policy
As a part of its commitment to ensuring that all children are healthy, the Center for the Study of Social Policy has developed a new web page entitled PolicyforResults, as well as a corresponding report that focus specifically onsupporting early healthy development. The information in this section is designed to support policymakers in their efforts to ensure that all families have access to the supports they need to ensure that their children are developmentally healthy. In addition to facts about the issue, the new page includes policy strategies that states can use to support the families of young children through effective support services that strengthen the family as a whole and ensure that all children get a healthy start in life. Read more.Data for Tracking Youth Transitioning to

Family Voices
Website created by family, friends, practitioners and caregivers for children with special health care needs. Site includes information, advocacy topics and resources.

Community Health Status Indicators Tool
Community Health Status Indicators show how social factors and the physical environment are especially important because they represent the conditions in which people are born, work, and play. Neighborhoods with affordable healthy food, safe and accessible housing, and quality employment opportunities can positively influence behaviors and help to create healthy lifestyles. See the Centers for Disease Control Community Health Status Indicators (CHSI),, an interactive online tool that provides public health profiles for all 3,143 counties in the United States.

US Census Bureau

Office of Financial Management: County and City Data for Washington
County specific information on the population, the economy, county government finance, and other collection of general information.

Office of Financial Management: Health Care
Washington health facts from the OFM.

Washington Tracking Network
This Washington State Department of Health website works to improve public health by delivering science-based information on health and the environment where we live, work, and play.

Languages Spoken in Washington State- Office of Superintendent of Public Instruction

Healthy People 2020
The nation’s health blueprint for the first decade of the 21st century spells out health indicators and goals, from the U.S. Department of Health and Human Services.

Child Health USA
Child Health USA is the Health Resources and Services Administration’s annual report on the health status and service needs of America’s children. The book is a compilation of secondary data for many health status indicators, and provides both graphical and textual summaries of data and addresses long-term trends.

Child Stat
Federal Interagency Forum website for child and family statistics — reports, publications and other statistical information. The signature report of the Federal Interagency Forum on Child and Family Statistics, America’s Children: Key National Indicators of Well-Being features statistics on children and families in the United States across a range of domains, including family and social environment, economic circumstances, health care, physical environment and safety, behavior, education and health. 2012 Report now available. is a one-stop resource for the growing ecosystem of innovators who are turning data into new applications, services, and insights that can help improve health. It is a public resource designed to bring together high-value datasets, tools, and applications using data about health and health care to support your need for better knowledge and to help you to solve problems. These datasets and tools have been gathered from agencies across the Federal government with the goal of improving health for all Americans. Check back frequently because the site will be updated as more datasets and tools become available.

Health Indicators Warehouse
Health Indicators Warehouse (HIW) is a new resource serving as the data hub for the HHS Community Health Data Initiative. It contains standardized health outcome and health determinant indicators along with associated evidence-based interventions, which can be easily displayed, and will benefit a broad variety of users.

Centers for Disease Control and Prevention
Data and statistics by topic page.

Access available statistics from over 100 Federal agencies.