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This page was last modified on : 02/08/2010

Family Support

 

Parent to Parent of Washington

Trained Helping Parent volunteers are available help parents who have children with disabilities or chronic health problems by providing emotional support and information about community resources for the whole family. Parent to Parent also has an ethnic outreach program which offers culturally relevant services.
1-800-821-5927

Fathers Network of Washington

The Fathers Network provides information and resources to assist all families and care providers involved in the lives of children with special needs. There are sixteen local programs across Washington which provide powerful, positive support and fellowship to fathers and families.
www.fathersnetwork.org/707.html

Family Voices of WA Family to Family Health Information Center

Call toll free: 1-800-5-PARENT

Serves families who have children and youth with special health care needs age birth to 18 years.  Provides individual information on how to advocate for your child in the health care system and refers you to resources that are available in Washington state that provide information on health care, insurance, Medical Home, and other helpful programs/resources.

www.familyvoicesofwashington.com/

Washington PAVE (Parents Are Vital in Education)

PAVE can provide support for parents who have learned that their child has a disability or chronic health care need, help parents understand the educational system for preschoolers and school-age children, assist parents in finding community services for parents and their child or adult with a disability, help parents as their child transitions from school to adult life. The main office is in Tacoma, with six more across the state. 1-800-5-PARENT (v/tty)

www.washingtonpave.org/


STOMP - Specialized Training of Military Parents

STOMP is the only National Parent Training and Information Center for military families providing support and advice to military parents without regard of the type of medical condition their child has.  Housed at PAVE, in Tacoma.

www.stompproject.org/

Parent to Parent Power

Dedicated to serving Asian parents of infants, toddlers and young adults with disabilities and networking families with special needs.  Based in Tacoma, but serves Asian families in Western WA including Canadian Border.

www.p2ppower.org/

NAMI (National Voice on Mental Health) of Washington

Education, advocacy and support for persons with brain disorders (mental illnesses) and their families.  To find the city or county group nearest you, go to:

www.nami.org/Template.cfm?Section=Your_Local_
NAMI&Template=/CustomSource/AffiliateFinder.cfm&

State=WA


Sibling Support Project

This national program offers workshops and support for the brothers and sisters of children and youth with special needs. Sibshops are offered in at least 11 Washington communities.
www.siblingsupport.org/sibshops/find-a-sibshop

Relatives As Parents Program

Contact information for support groups in all WA counties for grandparents and other relatives serving as parents
http://parenting.wsu.edu/Relative/support.htm

The ARC of Washington

The Arc of Washington State is affiliated with eleven local Arc chapters throughout the state. Along with local advocacy, they sometimes offer direct services, such as representative payeeship, problem solving, and crisis intervention. Although programs and services vary from chapter to chapter, they all help individuals and families gain access to services offered by other agencies. 1-888.754.8798 (calls from within Washington State only)
www.arcwa.org/local_arcs.htm

National Native American Families Together

An outreach project to increase partnerships between Native American families with a child with a disability  and the professionals serving their children. The NNAFT Parent Center provides information and assistance to families who have children with special needs.  Based in Moscow, Idaho but with parent support in Washington too.

www.php.com/national-native-american-families-together-parent-center

Community Parent Resource Center- Rural Outreach (WA)

805 Southwest Alcora
Pullman, WA 99163
509-595-5440
E-mail: routreach@adelphia.net

Starting Point Resource Guide

Search for “Family Support” under Resource Category
http://cshcn.org/sites/default/files/webfm/file/
StartingPointGuide.pdf

 

Finding Diagnosis Specific Organizations

Hospital-based Support Groups

  • Seattle Children's Hospital in Seattle hosts a variety of support groups/networks for families of children with special needs.  Most of the groups are led by social work or nursing staff.  Parents or parent-staff partnerships facilitate some groups. See more on the Parent Support Program for children with special health care needs or chronic health conditions: http://cshcn.org/support-connection/parent-support-program
  • List of support groups sponsored Children's:

    www.seattlechildrens.org/our_services/support_groups/

  • The Children's Resource Line at 206-987-2500 can provide information about additional support groups in the Puget Sound area.

 

Toll-Free Numbers for National Organizations Concerned with Disability and Children’s Issues

The following is a selected list of the of toll-free numbers for national organizations concerned with disability and children's issues. This list was compiled by the Autism-PDD Resources Network. There are also many national disability organizations providing services and information which do not have toll-free numbers.
www.autism-pdd.net/tollfree.html

Directories of National Support Groups

Compiled by CounselingSeattle.com
www.counselingseattle.com/resources/support-group.htm

Family Village

Click on “Library” to look up your the child’s specific diagnosis. You will find contact information and descriptions of national associations and networks related to your child’s diagnosis. These resources may lead to local contacts for support.

www.familyvillage.wisc.edu/

NORD - National Organization for Rare Disorders

Click on “Organizational Database” - Search by your child's diagnosis or the name of a support organization to find a support group or other source of help.
www.rarediseases.org/

 

 

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