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Down Syndrome

Family-Focused Information and Tools

Handouts

Links

Handouts

Your Baby and Down Syndrome - Answers to Questions You Might Have

From the National Down Syndrome Society

Available in English and Spanish in PDF format.
www.ndss.org/index.php?option=com_content&view=article&id=55&Itemid=75

The Nemours Foundation: Kids Health website

Down Syndrome (for children)

• English: www.kidshealth.org/kid/health_problems/
  birth_defect/down_syndrome.html
• Spanish: www.kidshealth.org/kid/en_espanol/
  enfermadades/down_syndrome_esp.html

Down Syndrome Brochure

From the National Down Syndrome Congress

http://www.ndsccenter.org/resources/dsBrochure.pdf

Down Syndrome Fact Sheet

From the National Down Syndrome Congress

http://www.ndsccenter.org/resources/package3.php

Information for Expectant Parents

From the National Down Syndrome Congress

http://www.ndsccenter.org/resources/light.php

Finding Out Your Child Has Down Syndrome

American Family Physician, American Academy of Family Physicians

www.aafp.org/afp/990115ap/990115d.html

Caring for a Child with Down Syndrome

American Family Physician, American Academy of Family Physicians

www.aafp.org/afp/990115ap/990115e.html

Down Syndrome NICHY Fact Sheet #4

National Information Center for Children and Youth with Disabilities (NICHY). 2002, 5-6 pages.

• English: http://nichcy.org/Disabilities/Specific/Pages/DownSyndrome.aspx
• Spanish: http://nichcy.org/Documents/Spanish%20pubs/FS4SP.pdf

National Library of Medicine - MEDLINEplus

• Medical Encyclopedia: Down Syndrome
  www.nlm.nih.gov/medlineplus/ency/article/000997.htm
• Down Syndrome
  www.nlm.nih.gov/medlineplus/downsyndrome.html

March of Dimes / Nacersanos (Spanish)

• English:  Down Syndrome

  www.marchofdimes.com/professionals/681_1214.asp

• Spanish:  Sindrome de Down

  www.nacersano.org/centro/9388_9974.asp

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Links

National Down Syndrome Society

Down syndrome website. Rich resources for families and professionals. Includes a section with information in Spanish
www.ndss.org

Family Village - Down Syndrome Pages

Waisman Center, University of Wisconsin

Informational resources on Down syndrome, communication connections, adaptive products and technology, adaptive recreational activities, education, worship, health issues, disability-related media and literature, and more for parents of individuals with Down Syndrome.
www.familyvillage.wisc.edu/lib_down.htm

Down Syndrome Health Issues Website

Len Leshin, MD, FAAP

Information for parents and professionals by pediatrician and parent Len Leshin. Articles on health issues for children with Down Syndrome, including controversies in care.
www.ds-health.com/

NOAH (New York Online Access to Health)

NOAH website: Down Syndrome pages. NOAH provides access to high quality full-text consumer health information in English and Spanish. Librarians and health professionals in New York and beyond find, select, and organize full-text consumer health information that is current, relevant, accurate and unbiased.
English:

www.noah-health.org/en/genetic/conditions/downs/

Down Syndrome Outreach- The ARC of Whatcom County (WA)

Welcoming Babies with Down Syndrome.

http://arcwhatcom.org/down_syndrome.html

Down Syndrome Community (WA)

Online support and access to lending library of books and other resources.  Puget Sound area affiliate of the National Down Syndrome Society and National Down Syndrome Congress. 

www.downsyndromecommunity.org/ (link not available 2/06)

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