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Down Syndrome

For Help Finding Local Services

Family Health Hotline

Statewide, toll-free Information and Referral Line from WithinReach to connect families to free or low-cost health insurance, food resources, immunizations, breastfeeding support, family planning services, parenting support, child development screening services, and many other social and health programs, including information for children with special health care needs. Access to interpretive service for 50 languages. Funding from the Department of Health.

1-800-322-2588 or 1-800-833-6388 (tty relay)
www.withinreachwa.org/hotlines

Family Resources Coordinator (FRC) / Infant Toddler Early Intervention Program

FRCs help families with children age 0-36 months who are concerned about their child's development get the early intervention services a child may need.  At the family's request, an FRC can help the family through screening, evaluation and assessment, the development of an Individualized Family Service Plan, receiving early intervention services and transition out of the early intervention program at age 3. More information about FRCs and early intervention services is available through the Washington State Department of Social and Health Services, Infant Toddler Early Intervention Program.    

Phone:  360-902-8488, (TTD) 360-902-7864.

http://www1.dshs.wa.gov/iteip/CountyOrgLinks.html

Children with Special Health Care Needs (CSHCN) Coordinator

CSHCN Coordinators are public health nurses in local health departments who can assist families who have children with special needs from birth to age 18. CSHCN Coordinators can:

• Help families access needed services for their child, such as medical care and other interventions.
• Refer families to health insurance programs and information, both private insurance and the state funded Medicaid program.
• Help families support each other through parent support organizations.
• Help with concerns such as feeding, nutrition, growth, development and behavior.
• Provide screening and assessment for your child.

  www.doh.wa.gov/cfh/mch/documents/coordlst.pdf

NOTE:  To go directly to the website of your local public health department or district,  see: www.doh.wa.gov/LHJMap/LHJMap.htm

Washington State Parent Support Organizations

• Parent to Parent - Statewide parent network providing emotional support and information to parents who have children with disabilities or developmental delays. 1-800-821-5927 www.arcwa.org/parent_to_parent.htm 

• Fathers Network - Advocates for and provides support and resources for all men and families who have children with special needs.  www.fathersnetwork.org

• PAVE (Parents Are Vital in Education) - Statewide parent training and information center providing assistance to families who children with disabilities, ages birth through adulthood.

  1-800-5 PARENT  www.washingtonpave.org

Genetic Clinics in Washington State

Search for listings of clinics and how to contact them from the WA Department of Health and from GeneClinics

www.medicalhome.org/resources/spd_m_genetic.cfm

For links to additional resources and services often needed by children wtih special health care needs and their families, see:  Resources by County on this website.