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Autism

Family-Focused Information and Tools

Research Participation

Handouts

Links for More Information

Spanish Language Information

Organizations

Research Participation

Interactive Autism Network (IAN) - Online Autism Registry

Familes of children with autism spectrum disorders can participate in a national online research project or be linked to other local and national research projects for which they qualify.  Housed at the Kennedy Krieger Institute in Baltimore, MD.

http://www.ianproject.org/

Handouts

Autism and Your Child

Handout from the American Academy of Family Physicians

http://familydoctor.org/634.xml

Autism Spectrum Disorders (Pervasive Developmental Disorders)

National Institute of Mental Health. Detailed booklet that describes symptoms, causes, and treatments, with information on getting help and coping.
www.nimh.nih.gov/publicat/autism.cfm

KidsHealth Autism Spectrum Information from the Nemours Foundation

For Parents

• Understanding Autism and other PDDs
  http://kidshealth.org/parent/medical/learning/pervasive_develop_disorders.html
• Asperger Syndrome

  www.kidshealth.org/parent/medical/brain/asperger.html

• Pervasive Developmental Disorder
• www.kidshealth.org/parent/medical/
  learning/pervasive_develop_disorders.html

For Teens

• Autism
  www.kidshealth.org/teen/diseases_conditions/learning/autism.html

For Children

• Autism
  www.kidshealth.org/kid/health_problems/brain/autism.html

 

NICHCY Autism Fact Sheet #1

National Information Center for Children and Youth with Disabilities (NICHCY).  Characteristics of children with autism, the impact of autism on a child's education, and resources. 5 pages.

• English:(Jan. 2004)
  www.nichcy.org/Disabilities/Specific/Pages/Autism.aspx
• Spanish:(Sept. 2004)
  www.nichcy.org/spanish/discapacidad/Pages/autismopdd.aspx

Pervasive Developmental Disorders NICHCY Fact Sheet # 20

National Information Center for Children and Youth with Disabilities (NICHCY) (Jan. 1998, resources updated Oct. 2003) 26 pages. Covers five specific disorders within this category, including autism, with the major focus on Pervasive Developmental Disorder Not Otherwise Specified (PDDNOS), also called PDD.
http://nichcy.org/InformationResources/Documents/NICHCY%20PUBS/fs20.pdf

Understanding Autism Spectrum Disorders (ASDs)

Information booklet from the American Academy of Pediatrics - Single copy $2.95 at AAP bookstore

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Links for More Information

Autism Information Center

National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control. Resources for Families, includes some information in Spanish.
www.cdc.gov/ncbddd/autism/

Family Village Website Autism Pages

Waisman Center, University of Wisconsin. Informational resources on autism, internet support groups, adaptive products and technology, adaptive recreational activities, education, worship, health issues, disability-related media and literature. Links to some information in Spanish and French.
www.familyvillage.wisc.edu/lib_autm.htm

Medlineplus:  Autism

National Library of Medicine and the National Institutes of Health

• Autism Pages
  www.nlm.nih.gov/medlineplus/autism.html
• Medical Encyclopedia: Autism
  www.nlm.nih.gov/medlineplus/ency/article/001526.htm

National Information Center for Children and Youth with Disabilities (NICHCY)

NICHCY website provides information on disabilities and disability-related issues for families, teachers, and other professionals. Some resources in Spanish. NICHCY staff will also give information and referrals over the phone (800-695-0285) or by email nichcy@aed.org. www.nichcy.org.
Autism articles at:
www.nichcy.org/Research/Basics/Pages/Disabilities.aspx#autism

 

TEACCH - Treatment and Education of Autistic and related Communication handicapped CHildren

University of North Carolina at Chapel Hill. Includes articles in Spanish
www.teacch.com

 

Spanish Language Resource

Manitas por Autismo: Spanish Autism Spectrum Disorder Website for Families

A new Web site, created by families for families, provides information in Spanish about Autism Spectrum Disorders (ASD). A chat room and forum area are under development. These will be moderated by parents of children with autism. Two doctors and an advocate will help to answer questions.  Sponsors include the Centers for Disease Control and the National Dissemination Center for Children with Disabilities. Go to www.manitasporautismo.com:80/

 

Organizations

Access for Autistic Youth Website

American Cultural Exchange.  Information in English, Spanish, Korean, Vietnamese, Russian, Chinese, Arabic and Somali. Much of the information is focused on King County, but has good Washington State and national resource lists as well. Phone: 1-800-328-8476 or 206- 217-9644.
www.cultural.org/aay/

Autism-PDD Resources Network

www.autism-pdd.net/

Autism Society Of America

Goals of ASA include education, advocacy, public awareness efforts and the promotion of research. Information and referral on the autism spectrum to parents, professionals, and members of the general public. 1-800-328-8476
www.autism-society.org/

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